While in first grade, Dylan Siegel’s best friend was diagnosed with a rare illness called glycogen storage disease type 1B, a rare liver disorder that doesn’t have a cure.
Dylan, six-years-old at the time, was determined to do something about that. To the surprise of his parents, he wrote a book called, “Chocolate Bar.” The book exploded, giving rise to t-shirt sales and a website helping to raise money. The book costs $20 with all proceeds going toward finding a cure. “Chocolate Bar” has now raised over $400,000 to the delight of researchers studying the disease.
“He’s raised more money for this disease than all the medical foundations and all the grants combined,” said Dr. David Weinstein, who studies and treats patients with the disease at the University of Florida. “Ever.”
With the money, Weinstein already has hired new staff.
For more info visit www.chocolatebarbook.com.